Resources
There are amazing models developing across the country. Check here to see a collection of stories on current housing, staffing, and future planning resources in New York and across the country.
Is Your Company Inclusive of Neurodivergent Employees?
The number of autistic people entering the workforce in the next 10 years and beyond is on the rise, with the growth cutting across racial, ethnic, and geographic lines. Currently, the unemployment rate among autistic people remains high, with some estimates coming in at over 80%. The heightened profile of disability, equity, and inclusion functions in major employers is already leading companies to think about forms of diversity beyond race and gender.
When the Parenting Never Stops
We have a mainstream directive for raising children in our society: You provide them with support, shelter and care until they’re 18, and then they’re supposed to be, more or less, self-sufficient, launched into the world as adults. This framework leaves out millions of parents whose children struggle with substance abuse or mental illness, who may be providing active care to their adult children for the rest of their lives.
Supported Decision-Making New York
Supported decision-making derives from the UN Convention on the Rights of Persons with Disabilities (CRPD), which has been ratified by more than 170 countries around the world. In accordance with their obligations under the CRPD, many countries have been working to limit or abolish their guardianship laws, and a number of them have created pilot projects on supported decision-making as a means to persuade their legislators and judiciaries that all people have a right to make their own decisions with support from trusted persons of their choice.
Neuro-Inclusive Housing Solutions
Nearly everyday, individuals with intellectual/developmental disabilities including autism are displaced or experience homelessness due to lack of residential options in their community.
Started by Desiree Kameka Galloway, a recognized disability housing expert, Neuro-Inclusive Housing Solutions, LLC seeks to advance neuro-inclusive community development by providing subject matter expertise to industry professionals.
The Kelsey
The Kelsey is an organization that is pioneering disability-forward housing solutions that open doors to homes and opportunities for everyone.
KELSEY’S STORY
What started with Kelsey has become a movement co-led by people with and without disabilities to build a disability-forward housing future.
Parents Are Creating Communities for Their Grown Children Who Have Special Needs
by Amy Lennard Goehner, AARP Livable Communities
Although the lack of affordable housing is a nationwide crisis, among the hardest hit are people with intellectual and developmental disabilities or differences (commonly abbreviated as I/DD). The inevitable and heartbreaking question that haunts every parent of a person with special needs, “What will happen to my child when I’m gone?”
Transition Center Workshop and Events Recordings
Perkins School for the Blind
A big concern for parents of neurodiverse or disabled children is wondering what services are available for their child when they transition out of school.
As a free resource, Perkins offers free Transition Talks workshops which are designed for parents and professionals to learn the many aspects of transition planning for young adults with disabilities. They provide both recordings and downloadable slide decks.
The Autism College Connection Webinar Series
From Autism to College - Life After High School
It is important to plan for a child’s future and Autism College Connection provides an excellent roadmap to do so. The transition process from high school to college can be daunting and lengthy but ACC helps plan and access financial and support services which can be used for a variety of needs including education, therapy, and employment.
This resource provides a year-by-year breakdown of key tasks and goals for parents and caregivers to focus on during the high school years and into young adulthood. Additional free resources are available such as a Wednesday webinar series for parents of neurodiverse kids.
News and Articles
Judy Woodruff on how her son with disabilities changed her view of health care
By Roxanne Roberts (Washington Post)
Entrepreneur with Autism Inspiring Others with his Booming Pretzel Business
By Breana Ross (WBAL)
Apple Rolls Out Accessibility Features Aimed At Users With Developmental Disabilities
By Michelle Diament (Disability Scoop)
Self-Direction: Empowering Individuals with Disabilities using State Medicaid Waiver Services
By Eric Jorgensen (TrueNorth Disability Planning)
Travel Better with the Hidden Disabilities Sunflower Program at New York-Area Airports
By The Boost
Disability Housing: What’s Happening?
By Micaela Connery (The Harvard Joint Center for Housing Studies)
The Ever-Changing Path to Independence—Step by Step
By Denise D. Resnik (Organization for Autism Research)
The Value of Neuropsychological Testing for Young Adults
By The Dorm, United Assessment, and Future Centered Care
My Daughter Expects to Work. Will She Make Only $3.35 an Hour?
By Pepper Stetler (New York Times)
In First, Feds Issue National Strategy To Support Family Caregivers
By Michelle Diament (Disability Scoop)
To Attract In-Home Caregivers, State Offers Paid Training — And Self-Care
By Laurie Udesky (Disability Scoop)